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A Mito Connect Call will be held on Thursday 16 May.
What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join. They are held monthly at a variety of times to help make them accessible for the community.
What to expect on a Mito Connect Call
A Mito Foundation staff member will welcome you when you dial in. Once everyone has dialed in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The Mito Foundation staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.
Click here for more information, and for tips on participating in the call.
Click here to find out about Mito Connect Calls for 2019.
An Information Day will be held on Saturday 25 May 2019 at Queensland Children’s Hospital.
Experts will present the latest research and medical developments in mitochondrial disease (mito). A support group meeting will be held after the event, providing you with an opportunity to meet others in the mito community.
Time: 10:00am – 12:50pm
Venue: Queensland Children’s Hospital
Mito Information Days are open to everyone affected by mito, whether you, or a family member, are waiting for a diagnosis, have recently been diagnosed or have had mito for some time.
2019 Bloody Long Walk National Series
Click here to register your interest for the 2019 series.
Ongoing – Albury Support Group
A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion. Meetings are held on the last Friday of the month at the Commercial Club Albury.
For more information, please call Craig on 0401 473 340.
NDIS Upcoming Events
The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS.
Please check back here for regular updates on information sessions. View a list of events.
Planning Your Own Event? Are you planning an event in support of the Mito Foundation? If so, please let us know by emailing firstname.lastname@example.org